RARE on the Road 2021

Since 2017, Global Genes and the EveryLife Foundation have partnered to host RARE on the Road events around the country, developing the next generation of advocacy leaders.

With feedback from the community, RARE on the Road 2021 will be comprised of one interactive webinar and three in-person meetings. While all parts of this event are geared toward empowering advocates to build their skill set, enhance their knowledge, engage in advocacy, and network with their local rare disease community, in-person events will focus on state-specific information based on their location.

In-person events will be held in accordance with local law and observe Centers for Disease Control COVID-19 guidelines.

2021 Save-the-Dates!

March 23, 2021 (11:00am-1:30pm ET): A Rare Disease Leadership Interactive Webinar

May 1, 2021: In-Person Training and Networking | Las Vegas, NV

May 15, 2021: In-Person Training and Networking | Miami, FL

May 22, 2021: In-Person Training and Networking | Chicago, IL

2021 Registration will open in February 2021. Stay tuned!


Thank you to our 2021 RARE on the Road sponsors.

Silver Level Sponsors

 Pfizer

Bronze Level Sponsors

           

Partners

         

University of Miami


About the EveryLife Foundation for Rare Diseases

The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.

About Global Genes

At Global Genes®, we believe that together we can do more to tackle the challenges of rare disease. We educate, equip, and empower the global community with tools and resources to influence change. We connect rare disease patients, advocates and rare disease experts to help eliminate the challenges of rare disease.