Registration is now open for the three Virtual State-Specific Training and Networking Events, here.
*Please note, registration for each state-specific training and networking event requires residency within the state being spotlighted. Reference the FAQs, here.
Watch the recording of the March 23rd Rare Disease Leadership Interactive Webinar here and access the webinar slide deck here.
Haz clic aquí para obtener información en español y para registrarte.
Since 2017, Global Genes and the EveryLife Foundation have partnered to host RARE on the Road events around the country, developing the next generation of advocacy leaders.
With feedback from the community, RARE on the Road 2021 will consist of one interactive webinar, open to all who wish to attend, regardless of their geographic location, and three virtual, state-specific meetings focusing on issues and resources relevant to residents in Nevada, Florida, and Illinois.
2021 RARE On The Road Dates:*
March 23, 2021 (11:00am-1:30pm ET): A Rare Disease Leadership Interactive Webinar (Watch the recording here.)
May 4, 2021: Virtual State-Specific Training and Networking Event | Nevada
May 11, 2021: Virtual State-Specific Training and Networking Event | Florida
May 18, 2021: Virtual State-Specific Training and Networking Event | Illinois
Note: All virtual state-specific training and networking events will take place from 10:00am-12:15pm in the local time zone for each state. (Nevada – Pacific Daylight Time, Florida – Eastern Daylight Time, Illinois – Central Daylight Time)
*Out of an abundance of caution regarding COVID-19, The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to transition our 2021 RARE on the Road State-Specific Training and Networking events from in-person to virtual. While we may not be able to convene in person, our commitment to facilitating interactive and meaningful experiences remains.
Thank you to our 2021 RARE on the Road sponsors.
Platinum Sponsors
Gold Sponsors
Silver Sponsors
Bronze Sponsors
Partners