RARE on the Road 2018

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!

Saturday, June 9, 2018
8:30 AM to 4:30 PM
United Way Community
Resource Center
50 Waugh Drive
Houston, TX 77007

Saturday, June 30, 2018
8:30 AM to 4:30 PM
Intermountain Primary
Children’s Hospital
(Eccles Outpatient Building)
81 N. Mario Capecchi Dr.
Salt Lake City, UT 84113

Saturday, July 21, 2018
8:30 AM to 4:30 PM
Adventure Science Center
800 Fort Negley Blvd
Nashville, TN 37203

Top four reasons why you should attend RARE on the Road:

LEARN more about your role and where your experience and knowledge can help patients and the rare disease community at large.

RECOGNIZE the immense impact public policy can make – become aware of legislation that can vastly improve the lives of rare disease patients.

CONNECT and collaborate with other rare disease patients and organizations – gain insights from others.

DISCOVER how to reach your ideal audience, position yourself as an expert, drive traffic to your site, and get your audience engaged through social media

Registration is only $25 and includes lunch.
We hope to see you on tour!

For more information, please contact:
Lisa Schilllschill@everylifefoundation.org
Amy Groveramyg@globalgenes.org

For information about sponsorship opportunities, please contact:

Carol Kennedy-EveryLife Foundation CKennedy@everylifefoundation.org

Kathy O’Connor-Global Genes kathyo@globalgenes.org

Seth Fritts-Global Genes sethf@globalgenes.org